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SVTPerformance's Chain of Restaurants
Road Side Pub
Child cancer or serioues illness.
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<blockquote data-quote="slow06" data-source="post: 15952071" data-attributes="member: 112601"><p>Update, Anthony has had good numbers since his last round of Chemo, but one of the Tumors in his right eye had broke off and seeded somewhere else in the eye, his surgeon had said he had saw something he wasn't sure of in May, but had used Cryo to kill what ever it was, I really didn't think anything of the convo in may, they weren't really concerned. I recently found out about it a week ago while going through Anthony's medical records. All tumors but one are stable, a tumor in the left eye is being a PITA and will not DIE. He is still on schedule to have his "no more Chemo" party in August, but will still have live cancer cells. I really don't get how it works like that though. I am happy he will be done, but also terrified this crap is going to spread like it is trying to. Maybe they might switch to radiation or local therapy where they inject the Chemo directly in the eye to kill the tumor. I have also started to look into Immunotherapy, they withdraw T cells, and "reprogram" the T cells to attack nothing but cancer, it has a 90% success rate but is only available to kids that have live cancer cells after a Chemo plan. I am trying to stay one step ahead of this so I can ask multiple questions about how we get rid of this disease. Friday the 13th will be a huge day also, he has a full body scan to make sure it has not popped up anywhere else. I have talked to god this last year more than I have in 34 years. </p><p></p><p>I have not posted lately, but I have been lurking around the forum daily. Lately I got into kind of a depression or funk, we found out 2 little kids we know at St. Judes did not make it. It's hard, it really hits home. I have had a little hard time sleeping and for the most part have been in deep thoughts. I was finally able to sit and talk to some friends and Anthony's mom and let them know how bad this is eating at me. </p><p></p><p>Yesterday was pretty cool though, I jumped on youtube for a few and was watching some Cobra videos and had the volume turned up, Anthony heard it, dropped what he was doing and wanted up in the chair. We used to watch Cobra videos all the time before he was diagnosed. </p><p></p><p>I was finally able to get one answer that I have been wanting since October though, I always wanted to know why Anthony was never scheduled earlier to see the Eye Specialist. My curiosity got the best of me and I decided to head to the Hospital in Charlotte and have every single medical record for him pulled for me. I went through every piece of paper until I got to the October file. The notes that were put down were "problem with red reflex, and a possible mass was in the way" but the diagnoses was Strabismus (cross eyed). That is why there was no urgency to get him seen sooner. That same appointment Anthony's mom asked him if it was Retinoblastoma, but his reply was "i don't think it's that serious" WTF man, you push his appointment out 1 month and let it grow so big it detaches his Retina??? We called mutliple times to get him seen sooner. I even posted on here what I thought it was on the 3rd of November. It really sucks, but for now all I can do is move forward with the little man and make sure he gets through this. Sorry for the rant, it just eats at me and I have been holding a lot in.</p><p></p><p>Riley is huge, 5 months old and around 50-55lb's now, she has calmed down a lot. She tries to herd Anthony around the room when he starts to go toward the stairs or other rooms.</p><p></p><p>Well here are some pics of the little man. He will be flying back to Memphis on the 9th and will be there until the 13th, or maybe the 14th, they have a speech therapist wanting to see him, he is 19 months old and does not want to really talk or try. He understands what we say to him, but we don't know if he is just stubborn or if he is a littlle autism because of the Chemo. Either way I love the little guy. I have everyone that knows this little guy praying for him, please continue to keep him in your thoughts and prayers.</p></blockquote><p></p>
[QUOTE="slow06, post: 15952071, member: 112601"] Update, Anthony has had good numbers since his last round of Chemo, but one of the Tumors in his right eye had broke off and seeded somewhere else in the eye, his surgeon had said he had saw something he wasn't sure of in May, but had used Cryo to kill what ever it was, I really didn't think anything of the convo in may, they weren't really concerned. I recently found out about it a week ago while going through Anthony's medical records. All tumors but one are stable, a tumor in the left eye is being a PITA and will not DIE. He is still on schedule to have his "no more Chemo" party in August, but will still have live cancer cells. I really don't get how it works like that though. I am happy he will be done, but also terrified this crap is going to spread like it is trying to. Maybe they might switch to radiation or local therapy where they inject the Chemo directly in the eye to kill the tumor. I have also started to look into Immunotherapy, they withdraw T cells, and "reprogram" the T cells to attack nothing but cancer, it has a 90% success rate but is only available to kids that have live cancer cells after a Chemo plan. I am trying to stay one step ahead of this so I can ask multiple questions about how we get rid of this disease. Friday the 13th will be a huge day also, he has a full body scan to make sure it has not popped up anywhere else. I have talked to god this last year more than I have in 34 years. I have not posted lately, but I have been lurking around the forum daily. Lately I got into kind of a depression or funk, we found out 2 little kids we know at St. Judes did not make it. It's hard, it really hits home. I have had a little hard time sleeping and for the most part have been in deep thoughts. I was finally able to sit and talk to some friends and Anthony's mom and let them know how bad this is eating at me. Yesterday was pretty cool though, I jumped on youtube for a few and was watching some Cobra videos and had the volume turned up, Anthony heard it, dropped what he was doing and wanted up in the chair. We used to watch Cobra videos all the time before he was diagnosed. I was finally able to get one answer that I have been wanting since October though, I always wanted to know why Anthony was never scheduled earlier to see the Eye Specialist. My curiosity got the best of me and I decided to head to the Hospital in Charlotte and have every single medical record for him pulled for me. I went through every piece of paper until I got to the October file. The notes that were put down were "problem with red reflex, and a possible mass was in the way" but the diagnoses was Strabismus (cross eyed). That is why there was no urgency to get him seen sooner. That same appointment Anthony's mom asked him if it was Retinoblastoma, but his reply was "i don't think it's that serious" WTF man, you push his appointment out 1 month and let it grow so big it detaches his Retina??? We called mutliple times to get him seen sooner. I even posted on here what I thought it was on the 3rd of November. It really sucks, but for now all I can do is move forward with the little man and make sure he gets through this. Sorry for the rant, it just eats at me and I have been holding a lot in. Riley is huge, 5 months old and around 50-55lb's now, she has calmed down a lot. She tries to herd Anthony around the room when he starts to go toward the stairs or other rooms. Well here are some pics of the little man. He will be flying back to Memphis on the 9th and will be there until the 13th, or maybe the 14th, they have a speech therapist wanting to see him, he is 19 months old and does not want to really talk or try. He understands what we say to him, but we don't know if he is just stubborn or if he is a littlle autism because of the Chemo. Either way I love the little guy. I have everyone that knows this little guy praying for him, please continue to keep him in your thoughts and prayers. [/QUOTE]
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