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SVTPerformance's Chain of Restaurants
Road Side Pub
Tinnitus
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<blockquote data-quote="JimCSHO" data-source="post: 15581408" data-attributes="member: 183032"><p>It is a pain in the a$$ - most days it hasn't been too bad, but a major attack will take me down for a day or two.</p><p></p><p>Dizziness is part of it - brought on by fluid in the inner ear. For some reason someone with meniere's develops more fluid than can be handled. My first major attack came with no warning. I was sitting at my desk and suddenly the room started to spin, couldn't focus my eyes, couldn't walk down the hallway without holding the wall. It was as if I had been drinking heavily. There is no way to stop the spinning so with a major attack eventually I throw up. </p><p></p><p>Initial treatment is with steroids. They do help - but the side effects were so bad that I couldn't do them My wife noticed that within hours of the first dose I became irritable. So while the meniere's and hearing improved, the side effects were not good.</p><p></p><p>So we tried diet - low salt diet to reduce the amount of fluid retained. In today's world an extremely low salt diet is almost impossible though. My specialist told me the first time to take no more than 1500 mg of sodium a day. At my follow up I told him that I couldn't do it - you'd be surprised how much sodium is in every day foods. His response was "good, now you know and so can control it better".</p><p></p><p>We tried a different steroid treatment. He said that obviously I can't do oral steroids, but since I had a positive reaction to them for the meniere's we "need to get them where they are needed". That meant an injection, through the ear drum, into the inner ear. As bad as that was, IF it had helped I would have gone through it again.</p><p></p><p>The past year I was getting daily minor attacks. Walking down the hall and things would start to move, or I would get off balance suddenly and bump the wall, or the room would start a small spin. Most of the time I could focus my eyes on a spot and within 20 minutes it would stop.</p><p></p><p>After 3 major attacks between August and November 2016 though I opted for surgery. (endolymphatic sac decompression - google it). Since the surgery I haven't had any attacks to speak of. A couple of minor ones that passed quickly is all.</p></blockquote><p></p>
[QUOTE="JimCSHO, post: 15581408, member: 183032"] It is a pain in the a$$ - most days it hasn't been too bad, but a major attack will take me down for a day or two. Dizziness is part of it - brought on by fluid in the inner ear. For some reason someone with meniere's develops more fluid than can be handled. My first major attack came with no warning. I was sitting at my desk and suddenly the room started to spin, couldn't focus my eyes, couldn't walk down the hallway without holding the wall. It was as if I had been drinking heavily. There is no way to stop the spinning so with a major attack eventually I throw up. Initial treatment is with steroids. They do help - but the side effects were so bad that I couldn't do them My wife noticed that within hours of the first dose I became irritable. So while the meniere's and hearing improved, the side effects were not good. So we tried diet - low salt diet to reduce the amount of fluid retained. In today's world an extremely low salt diet is almost impossible though. My specialist told me the first time to take no more than 1500 mg of sodium a day. At my follow up I told him that I couldn't do it - you'd be surprised how much sodium is in every day foods. His response was "good, now you know and so can control it better". We tried a different steroid treatment. He said that obviously I can't do oral steroids, but since I had a positive reaction to them for the meniere's we "need to get them where they are needed". That meant an injection, through the ear drum, into the inner ear. As bad as that was, IF it had helped I would have gone through it again. The past year I was getting daily minor attacks. Walking down the hall and things would start to move, or I would get off balance suddenly and bump the wall, or the room would start a small spin. Most of the time I could focus my eyes on a spot and within 20 minutes it would stop. After 3 major attacks between August and November 2016 though I opted for surgery. (endolymphatic sac decompression - google it). Since the surgery I haven't had any attacks to speak of. A couple of minor ones that passed quickly is all. [/QUOTE]
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