Child cancer or serioues illness.

[slow06]

Anthony fell a sleep for the night, I decided to let Riley run around, she is like having another little kid, always trying to get into something.

First pic is on may 9th she has grown a lot more since.

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[slow06]

Little man and his mom flew out to Memphis on Monday the 11th. I wasn't able to make the trip with them this time, which sucked, but bills got to be paid still. Everything has gone good though, but he did have a little complication during his eye surgery today. The surgeon said Anthony had stopped breathing for a minute, but Anthony was able to snap himself out of it.

Some of the best new I have got in a while is that his Oncologists have started talking about his "No more Chemo party" in August. The tumors have shrunk and some are not active. This year has gone by way faster than expected, I actually got time tonight to sit and think of how far he has come, and what he has battled through.

Tomorrow they fly home, and I can't wait to wrap my arms around him. This has been the first time I have not been around him since he was diagnosed with cancer in November.

I really appreciate you guys caring for him and continuing to keep him in your thoughts and prayers.

Here are some pics of his latest round.

 

[gimmie11s]

Great update thanks for sharing! He is so cool.

God Bless!


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[Smooth]

Love that little guy. Thanks for the update. Continued prayers.

 

[2013GT'ed]

Thats great to hear!! Make sure there is plenty of ice cream for him at that party, lottle dude deserves it!!

 

[BlksvtCobra01]

Happy for some good news. God bless you.


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[BrunotheBoxer]

I love to read that Anthony is doing well and headed for a full recovery.

 

[Dbzguy]

That's good news Bro!

 

[kidds302]

Everything will be just fine! have faith.

 

[MG0h3]

Keep after it man.

One foot in front of the other.

Happy for y’all


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[tones_RS3]

Great news! I will continue to pray for Anthony.

 

[slow06]

Update, Anthony has had good numbers since his last round of Chemo, but one of the Tumors in his right eye had broke off and seeded somewhere else in the eye, his surgeon had said he had saw something he wasn't sure of in May, but had used Cryo to kill what ever it was, I really didn't think anything of the convo in may, they weren't really concerned. I recently found out about it a week ago while going through Anthony's medical records. All tumors but one are stable, a tumor in the left eye is being a PITA and will not DIE. He is still on schedule to have his "no more Chemo" party in August, but will still have live cancer cells. I really don't get how it works like that though. I am happy he will be done, but also terrified this crap is going to spread like it is trying to. Maybe they might switch to radiation or local therapy where they inject the Chemo directly in the eye to kill the tumor. I have also started to look into Immunotherapy, they withdraw T cells, and "reprogram" the T cells to attack nothing but cancer, it has a 90% success rate but is only available to kids that have live cancer cells after a Chemo plan. I am trying to stay one step ahead of this so I can ask multiple questions about how we get rid of this disease. Friday the 13th will be a huge day also, he has a full body scan to make sure it has not popped up anywhere else. I have talked to god this last year more than I have in 34 years.

I have not posted lately, but I have been lurking around the forum daily. Lately I got into kind of a depression or funk, we found out 2 little kids we know at St. Judes did not make it. It's hard, it really hits home. I have had a little hard time sleeping and for the most part have been in deep thoughts. I was finally able to sit and talk to some friends and Anthony's mom and let them know how bad this is eating at me.

Yesterday was pretty cool though, I jumped on youtube for a few and was watching some Cobra videos and had the volume turned up, Anthony heard it, dropped what he was doing and wanted up in the chair. We used to watch Cobra videos all the time before he was diagnosed.

I was finally able to get one answer that I have been wanting since October though, I always wanted to know why Anthony was never scheduled earlier to see the Eye Specialist. My curiosity got the best of me and I decided to head to the Hospital in Charlotte and have every single medical record for him pulled for me. I went through every piece of paper until I got to the October file. The notes that were put down were "problem with red reflex, and a possible mass was in the way" but the diagnoses was Strabismus (cross eyed). That is why there was no urgency to get him seen sooner. That same appointment Anthony's mom asked him if it was Retinoblastoma, but his reply was "i don't think it's that serious" WTF man, you push his appointment out 1 month and let it grow so big it detaches his Retina??? We called mutliple times to get him seen sooner. I even posted on here what I thought it was on the 3rd of November. It really sucks, but for now all I can do is move forward with the little man and make sure he gets through this. Sorry for the rant, it just eats at me and I have been holding a lot in.

Riley is huge, 5 months old and around 50-55lb's now, she has calmed down a lot. She tries to herd Anthony around the room when he starts to go toward the stairs or other rooms.

Well here are some pics of the little man. He will be flying back to Memphis on the 9th and will be there until the 13th, or maybe the 14th, they have a speech therapist wanting to see him, he is 19 months old and does not want to really talk or try. He understands what we say to him, but we don't know if he is just stubborn or if he is a littlle autism because of the Chemo. Either way I love the little guy. I have everyone that knows this little guy praying for him, please continue to keep him in your thoughts and prayers.

 

[7998]

I know it's easier to say from behind my screen than it is to read from yours, but you can't look back and change the past. It'll only frustrate and anger you. It's hard enough to be positive in this situation. Everytime I pray I pray for Anthony and you guys. Thank you for the updates and pictures.

 

[MG0h3]

I can vouch for what 7998 is saying from personal experience. Too long of a story to type out but my daughter got very sick at 1. Must have given us 3-4 diagnosis from cancer, metabolic disorders, bone marrow disorders until they finally said unknown disorder. By three they were saying it was terminal with expectancy or 6-7yrs old. After that it was 10-11yrs old. She’ll be 11 in Nov but I learned a LONG time ago to take what docs say with a grain of salt. They are human, make mistakes, and half the time they are shooting in the dark at this stuff. I truly believe they always mean well though.

I spent ALOT of time 6-7 yrs ago going through thousands of pages of medical records trying to find where they caused this with all the drugs and treatments for the wrong diseases they gave her. Wasn’t gonna happen and waste of mental and emotional energy.

Tough as hell and sometimes it’ll get the best of you. As long as you know it’ll happen but that you’ll be alright you can get through it.

Hang in there and thoughts and prayers for you.


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[Ford>Chevy]

Glad to hear the little guy is doing so well OP. FWIW, when I try to get my mind off something I do what you do. Either watch some of my favorite YouTube videos, or try and involve myself in other activities. But something that has always really helped me in tough times was music. I don't know how much music interests you or Anthony, but there is nothing like a good song or songs to just get lost in. I remember my dad would put on random music when I was young and I would smile when I heard songs or videos just like your son. You'll never forget the wonderful moments associated with music, even through the hard times. To this day I remember elements of my childhood through music. It's so weird, but it's true.

 

[BrunotheBoxer]

I could never imagine going through this and being as strong as you have been. All I know is that I love Anthony and pray for him often.

Keep being strong and take care of yourself too. You might want to speak to a professional or go to a group therapy.
Anthony is in great hands.

 

[Smooth]

I could never imagine going through this and being as strong as you have been. All I know is that I love Anthony and pray for him often.

Keep being strong and take care of yourself too. You might want to speak to a professional or go to a group therapy.
Anthony is in great hands.

I couldn't have said it better. Still praying for the little man.

 

[PaxtonShelby]

Prayers to you and Anthony from Pittsburgh. Hang in there buddy - stay focused on your goal.

Thanks for taking the time to keep us updated and for sharing your story and thoughts with us.

 

[slow06]

Thanks for everything, I was able to talk to a good friend of mine who has always been a ear for me. He heard me out and was blunt with me. Told me to "live in the moment with Anthony and he knows Anthony is getting better by hearing him laugh and watching him run around". When I really think about it, this whole thing has not really slowed him down at all. He is a little monster just like other little kids, he gets into everything and when he knows he is caught he gives you this big grin. Today he tried to drink out of a soda can and the face he made when the fizz hit his tongue was priceless. He made a "wtf" face haha. He has put on 6lb's in the last month, and he has 13 strands of hair, I kind like the way he looks bald though, he looks like a little menace.

Ford>chevy, music has always helped, one song can lead to hundreds more. I listen to everything and it does bring back memories of me growing up and certain family members. Anthony seems to like Rock music, and exhaust videos lol.

Bruno, thanks for everything. From reading other threads and posts it seems like you and your dad are very close. That's awesome. I hope me and Anthony have a similar relationship when he is a grown man.

Tomorrow the little man makes his flight back to Memphis for round 10 out of 11, time has flown by actually. Might even get some time to get back into the gym.

 

[2013GT'ed]

I will say the same things everyone else is. Screw the past and live with the future you NOW have with your little man. My third is almsot here and I find myself almost unable to remain focused at work or doing anything else. It make me happy to see your little one doing so good and see him bonding with that pup. He needs that love just as much as you and your wife do. I will be watching and waiting for more updates here, just busy prepping for my new baby and keeping up with the other two.